Events
SCAR-15 Soirée: Raising the Bar for Research
The SCAR-15 Soirée was an unforgettable evening filled with connection, generosity, and purpose as friends, family, advocates, donors, and many new members of the Jack Bear community came together to support our mission.
We were honored to welcome two of our esteemed researchers, Dr. Erica Davis (Stanley Manne Children’s Research Institute at Ann & Robert H. Lurie Children’s Hospital of Chicago, Professor of Pediatrics and Cell and Developmental Biology) and Dr. Stephanie Efthymiou (Queen Square Institute of Neurology, Department of Neuromuscular Disorders, University College London). Their presence and powerful words reminded us of the profound impact this community is having in advancing SCAR-15 research.
The evening brimmed with energy from a spirited silent auction and live auction, to the continued excitement of our Soirée Sequel Virtual Silent Auction. Together, we raised an incredible $90,454, with donations continuing to grow in the days that followed.
We are deeply grateful to everyone who joined us, donated to the fundraiser, contributed auction items, or helped spread the word. Together, we are raising the bar for research and bringing hope to families affected by SCAR-15.
Past Events
Thank You, Hillgrove Avenue Magazine
We are deeply grateful to Editor & Publisher, Mike Ellis and Hillgrove Avenue Magazine for featuring Jack and his longtime friend, Charlotte Weckman, in the February issue in honor of Rare Disease Month.
Thank you, Vintage Charm
We are so grateful to Vintage Charm for featuring Jack’s story and the Jack Bear Foundation as part of their Sunday Sessions series.
Tour of Dr. Erica Davis’s research lab at the Stanley Manne Children's Research Institute at Ann & Robert H. Lurie Children's Hospital of Chicago
Dr. Davis and her team are using cutting edge research with zebrafish (they have two eyes, a mouth, brain, spinal cord, intestine, pancreas, liver, bile ducts, kidney, esophagus, heart, ear, nose, muscle, blood, bone, cartilage, and teeth!) to study rare pediatric genetics. 70% of human genes are found in zebrafish!
The Jack Bear Foundation Guest Bartending Night At Milkstop
On Saturday, May 31st, members of the Jack Bear Foundation team guest bartended at Milkstop Cafe in La Grange.
The Jack Bear Foundation made its debut at the 79th Annual LaGrange Pet Parade!
On Saturday, May 31st, the Jack Bear team strolled in the annual La Grange Pet Parade.
National Ataxia Foundation Conference
Over spring break, we attended the National Ataxia Foundation Conference in Las Vegas—our first time participating in this incredible gathering of families, advocates, and researchers.
Jack Bear Winter Skate
The Jack Bear Winter Skate was nothing short of incredible! It was a special day that brought the Jack Bear community together, filled with energy, love, and support for SCAR-15 research.
Tiny Philanthropists Mechanical Pencil Fundraiser
We extend our heartfelt gratitude to all the students at Forest Hills Elementary who supported the Mechanical Pencil Sale held during lunchtime over two days in November. The enthusiasm, energy, and generosity shown throughout the event made it truly special.
JAYNE Shopping Fundraiser
We’re thrilled to share the success of our recent shopping fundraiser in partnership with JAYNE, where 20% of the day’s sales made by Jack Bear supporters were donated to the foundation.
Jack Bear Foundation Launch Party
Oh what a night! We felt the love, compassion and encouragement surrounded by family, friends, colleagues and our community at the Jack Bear Foundation’s launch party on September 7th, 2024.