Events
Following the success of last year’s Jack Bear Foundation Launch Party, we’re excited to return this fall with the SCAR-15 Soiree: Raising the Bar for Research. This special evening will bring together families, friends, and advocates to celebrate the progress made and energize the next phase of SCAR-15 and RUBCN gene research.
Since launching in February 2024, the foundation has raised over $445,000 to support scientific discovery and outreach for this ultra-rare condition. With more than 200 guests expected, the Soiree promises a night of inspiration, community, and continued momentum for the Jack Bear mission. Hope to see you there!
Become a Sponsor or Donate a Live Auction Item
Thank You To Our Sponsors
Pinnacle Sponsors — $10,000
The Oremus Family
Susan Benton
Margi & Randy Truckenbrodt
Twinkling Partner — $5,000
Sally & Tom Loverro
Soirée Circle — $1,000
The Bestold Family
The Larson Family
Past Events
Tour of Dr. Erica Davis’s research lab at the Stanley Manne Children's Research Institute at Ann & Robert H. Lurie Children's Hospital of Chicago
Dr. Davis and her team are using cutting edge research with zebrafish (they have two eyes, a mouth, brain, spinal cord, intestine, pancreas, liver, bile ducts, kidney, esophagus, heart, ear, nose, muscle, blood, bone, cartilage, and teeth!) to study rare pediatric genetics. 70% of human genes are found in zebrafish!
The Jack Bear Foundation Guest Bartending Night At Milkstop
On Saturday, May 31st, members of the Jack Bear Foundation team guest bartended at Milkstop Cafe in La Grange.
The Jack Bear Foundation made its debut at the 79th Annual LaGrange Pet Parade!
On Saturday, May 31st, the Jack Bear team strolled in the annual La Grange Pet Parade.
National Ataxia Foundation Conference
Over spring break, we attended the National Ataxia Foundation Conference in Las Vegas—our first time participating in this incredible gathering of families, advocates, and researchers.
Jack Bear Winter Skate
The Jack Bear Winter Skate was nothing short of incredible! It was a special day that brought the Jack Bear community together, filled with energy, love, and support for SCAR-15 research.
Tiny Philanthropists Mechanical Pencil Fundraiser
We extend our heartfelt gratitude to all the students at Forest Hills Elementary who supported the Mechanical Pencil Sale held during lunchtime over two days in November. The enthusiasm, energy, and generosity shown throughout the event made it truly special.
JAYNE Shopping Fundraiser
We’re thrilled to share the success of our recent shopping fundraiser in partnership with JAYNE, where 20% of the day’s sales made by Jack Bear supporters were donated to the foundation.
Jack Bear Foundation Launch Party
Oh what a night! We felt the love, compassion and encouragement surrounded by family, friends, colleagues and our community at the Jack Bear Foundation’s launch party on September 7th, 2024.