An Inspiring Evening with Lurie Children’s
On October 8th, Carrie had the privilege of attending an intimate and inspiring gathering hosted by Lurie Children’s Hospital. The evening featured three incredible leaders whose work is shaping the future of rare disease research:
Dr. Carlos Prada, Division Head of Genetics
Dr. Shannon Haymond, Division Head of Pathology
Dr. Kelly Regan-Fendt, a rising star in the Genetics Division leading innovative N-of-1 trials
Hearing directly from these experts left us feeling hopeful and energized. As an ultra-rare disease family in Chicago, it means so much to see Lurie investing in the best talent and the tools, technologies, and resources needed to build a leading hub for genetics research.
A heartfelt thank you to the Founders’ Board of Lurie Children’s for creating this opportunity. Evenings like this remind us that progress is happening and the future is bright for families affected by rare genetic conditions like SCAR-15.
