Winter Wishes at Lurie Children’s

We attended the Winter Wishes event, where the Robinson family shared their powerful journey to answers through early genetic testing. Their story was a beautiful reminder of why this work matters and why we believe finding scientific answers and ultimately treatment for Jack and others with SCAR-15 is within reach. 

The Jack Bear Foundation was honored to sponsor this year’s event, benefiting the Edwards Family Division of Genetics and Rare Diseases at Lurie Children’s thanks to The Founders’ Board. Being surrounded by families, clinicians, and researchers dedicated to rare disease gave us so much hope.