Jack Bear Foundation Attends the Combined Brain Annual Meeting

On behalf of the Jack Bear Foundation, Carrie attended the Combined Brain Annual Meeting in Nashville, joining a powerful consortium of nonprofit organizations working together to fast-track treatments and cures for rare genetic neurodevelopmental disorders. We are proud to be part of this collaborative network dedicated to accelerating progress for families like ours. 

Across several insightful days, we focused on clinical trial readiness, emerging technologies, and new strategies in rare disease research. We learned directly from doctors, researchers, industry experts, and fellow rare disease parents who are leading advocacy efforts for their own communities.

The experience left us both encouraged and deeply connected to this special community. While the path forward in rare disease research is long, hearing from groups already entering clinical trials was incredibly inspiring and a powerful reminder that every step forward matters.