SCAR-15

A foundation committed to finding treatment and a cure for individuals living with Spinocerebellar Ataxia Recessive Type 15, a rare degenerative genetic disease.

SCAR-15 Soirée: Raising the Bar for Research

The SCAR-15 Soirée was an unforgettable evening filled with connection, generosity, and purpose as friends, family, advocates, donors, and many new members of the Jack Bear community came together to support our mission.

We were honored to welcome two of our esteemed researchers, Dr. Erica Davis (Stanley Manne Children’s Research Institute at Ann & Robert H. Lurie Children’s Hospital of Chicago, Professor of Pediatrics and Cell and Developmental Biology) and Dr. Stephanie Efthymiou (Queen Square Institute of Neurology, Department of Neuromuscular Disorders, University College London). Their presence and powerful words reminded us of the profound impact this community is having in advancing SCAR-15 research.

The evening brimmed with energy from a spirited silent auction and live auction, to the continued excitement of our Soirée Sequel Virtual Silent Auction. Together, we raised an incredible $90,454 with donations continuing to grow in the days that followed.

We are deeply grateful to everyone who joined us, donated to the fundraiser, contributed auction items, or helped spread the word. Together, we are raising the bar for research and bringing hope to families affected by SCAR-15.

PHOTO GALLERY

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